Resource Links — TRANSFORM


Resources for governments, agencies, organizations and community associations to assist with system transformation, new ways of thinking about mission fulfillment and service that increases service system effectiveness and the community at large.


California Department of Developmental Services

Agency providing services and supports to individuals with developmental disabilities


California Department of Developmental Services-Consumer Corner

Materials by DDS Consumer Advisory Committee for consumers, families and professionals


Association of Regional Center Agencies

Association of regional centers – advancing Lanterman Developmental Disabilities Services Act


California Department of Education

Agency providing education services


California Department of Rehabilitation

Agency providing rehabilitation and employment services to persons with disabilities


California Association of Family Empowerment Centers

Information, resources, technical assistance and advocacy fto network of Family Empowerment Centers


Fiesta Educativa

Empowering families of persons with disabilities


ADAPT: Americans Disabled for Attendant Programs Today

Legislative proposals, news releases, organization newsletter and advocacy information related to community inclusion and community supports.


The American Association on Intellectual and Developmental Disabilities

AAIDD: The professional association run by and for professionals who support people with intellectual and developmental disabilities.


Bazelon Center for Mental Health Law

Legal advocacy for the civil rights and human dignity of people with mental disability.


The Beach Center on Disability

The Beach Center is a national research and education center on disability located at the University of Kansas. Excellent site for practical tips, articles, best practices and other information.


Center for Health Services Research and Policy

George Washington University Medical Center: Information, research and white papers related to legal, health care and work-related issues for children or adults with disabilities.


The Council on Quality and Leadership

An international non-profit organization dedicated to advancing the quality of services and supports to people with disabilities. This is accomplished through its accreditation services, training programs, and research division.


Disability Rights Education and Defense Fund

National law and policy center dedicated to protecting and advancing the civil rights of people with disabilities through legislation, litigation, advocacy, technical assistance, and the education and training of attorneys, advocates, persons with disabilities, and parents of children with disabilities. Includes legal cases, links, and resources.


Disability Statistics Center

The purpose of the Disability Statistics Center is to produce and disseminate statistical information on disability and the status of people with disabilities in American society, and establish and monitor indicators of how conditions are changing over time to meet their health, housing, economic and social needs.


Fedworld Web site

Offers a data search component of federal agencies, including the IRS and Environmental Protection Agency.

The U. S. Government's official web portal offers access to all federal web sites and sponsored resources as well as current statistics, research and information.


National Association of Councils on Developmental Disabilities

Public policy information and resources related to developmental disabilities.


National Center on Disability & Journalism

Site devoted to educating journalists and educators about disability reporting issues.


National Council on Disability

NCD: Access to federal policies, programs, practices and procedures related to equal opportunities for individuals with disabilities. Includes agency information and resources.


National Disability Rights Network

NDRN: The National Disability Rights Network (NDRN) is the largest provider of legally-based advocacy services to people with disabilities in the United States. NDRN provides training and technical assistance, legal support, and legislative advocacy services.


The Arc

Online access to facts, resources, advocacy information and news for people with mental retardation and related developmental disabilities.


Disability Grapevine

Daily online newspaper, delivered via e-mail, devoted to disability news and commentary. Presented by the Institute for Cultural Research for People with Disabilities (ICRPWD).


Justice For All

E-mail notification of action alerts related to Congressional legislative issues impacting people with disabilities.


Not Dead Yet

Deals with euthanasia issues.


Organizing for Social Change

Midwest Academy (Santa Ana, CA: Seven Locks Press, 2001).


The Ragged Edge

Online magazine covering the disability experience in America.


Real Clout!

A how-to manual for community-based activists trying to expand healthcare access by changing public policy. Available through The Access Project (617-654-9911).


The Virtual Activist

Compilation of activist sites, issues and resources available on the Internet.


Independent Living Research Utilization

Information on Olmstead decision and its application, ADA, managed care, health issues and international disability issues. Includes resources, related sites, discussion groups.


Institute on Community Integration

University of Minnesota: Resources and information related to disability issues, organized by key project and issues. Includes related resources and web sites.


Institute for Policy Research

Northwestern University: Research on significant public policies related to social sciences.


N.O.A.H. Foundation

Web site for a nonprofit agency focused on educating home buyers and sellers on the financing process, provides some down payment assistance and home purchase planning.



Access to printed and online resources, as well up-to-date information on key public policy issues related to inclusion.


Center for the Study and Advancement of Disability Policy

CSADP: The Center for the Study and Advancement of Disability Policy provides public education, leadership development and training, technical assistance and information dissemination, and conducts action-research and analysis of public policy issues affecting individuals with disabilities and their families.


Council for Exceptional Children

The largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted.


Education Law Resource Center

The Center provides information to help parents and educators to better understand legal requirements and meet individual student needs. Topics include special education, physical restraints, and the No Child Left Behind law.


National Dissemination Center for Children with Disabilities

Provides information on disabilities and disability-related issues for families, educators, and other professionals. Their special focus is children and youth (birth to age 22). If you have children with disabilities and don't know where to turn for assistance, make this your first stop.


National Institute for Urban School Improvement

Extensive library of resources, research, publications and online sites related to inclusive education.


National State Policy Database

Rules and regulations related to special education, accessed by state, plus links to IDEA and all state education agency web sites.


New Hampshire Education Law

NHELaw: The NHELaw publishes training manuals and conducts trainings for parents, educators, attorneys, and other professionals involved in education issues.


Special Education Resources on the Internet

A collection of Internet accessible information resources of interest to those involved in the fields related to special education.


U.S. Department of Education

Access to comprehensive information on education and educational policy in the United States, including special education.



Site for accurate, up-to-date information related to advocacy for special education and special education law.


Data Resource Center for Child and Adolescent Health

Research tool for collecting demographic and other health related data about this population, and making state-by-state comparisons.


Healthy People 2010

Health care information and publications that challenge individuals, communities, and professionals to take specific steps to ensure good health is enjoyed by everyone.


National Health Law Program

NHeLP: Provides extensive information on health care law affecting low-income people. The site is updated daily with health law news, legislative analysis, and health law Internet links.


Online Health Services

Directory of disabilities related web sites.


Cornell University, ILR School Employment and Disability Institute

The Employment and Disability Institute conducts research, and provides technical assistance and continuing education on disability and the workplace issues.


Disability Advocacy: Suite 101

Information on disability rights and advocacy, featuring recent articles, discussion groups and resources.


National Center on Secondary Education and Transition

NCSET: Self-Determination for Middle and High School Students
The National Center on Secondary Education and Transition (NCSET) provides technical assistance and disseminates information focused on areas of national significance for youth with disabilities and their families.


National Program Office on Self-Determination – Institute on Disability University of New Hampshire

The Institute on Disability/UCED at the University of New Hampshire focuses on improving knowledge, policies, and practices related to the lives of persons with disabilities and their families.

Virginia Commonwealth University: Information, resources and research related to work and disability issues.


Human Services Research Institute

HSRI: The Human Services Research Institute was established in 1976 to help states and the federal government enhance services and supports to people with mental illness and people with mental retardation. They also are working to develop alternatives to congregate care facilities.


"Policy Research Brief: Family Support Services in the United States Research and Training Center on Community Living"

University of Minnesota, February 2006.


Research & Training Center on Family Support and Children's Mental Health

The Center's research and training activities focus on improving services to children and youth who have mental, emotional, or behavioral disorders and their families.



Objective information about assistive technology products and rehabilitation equipment available from domestic and international sources.


American Eugenics Movement

Comprehensive archive of images, documents and exhibits related to the American Eugenics Movement.


Bazelon Center for Mental Health Law

A national legal advocate for people with mental disabilities.


Beyond Affliction: The Disability History Project

Four-hour radio series focusing on people with disabilities and their families since the beginning of the 19th century.


Center for Human Policy – Disability Studies for Teachers

Lesson plans and materials designed to help teachers integrate disability studies into social studies, history, literature, and related subjects in grades 6–12. The plans and materials also can be adapted for use in postsecondary education.


Center for Independent Living: Mission and History

History of the Center for Independent Living at the University of California, Berkeley, a national leader in helping people with disabilities live independently and become more productive.


Chronology of the Disability Rights Movement

Chronological overview of the Disability Rights Movement in the United States, from 1817 through 1996.

Online connection to the federal government's disability-related information and resources.


The Disability History Museum

The Disability History Museum has no bricks and mortar. The virtual museum is home to a searchable, theme-based digital collection of documents and images related to disability history in the United States. Artifacts are drawn from public and private collections around the country.


Disability Resources Monthly WebWatcher: History of Disability

Online review of resources and web sites related to the history of people with disabilities.


Disability Rights and Education Defense Fund (DREDF) - A History of Section 504

History of Section 504, including eyewitness accounts.


The Disability Rights and Independent Living Movement

The UC Berkeley's web site on the Disability Rights and Independent Living Movement includes a collection of primary sources exploring the social and political history of the disability movement from the 1960s to the present. Includes oral history.


Disability Social History Project

A community history project that outlines important events in disability history, topical exhibits, special projects and resources.


Disability Studies Online Magazine

List of books and resources for educators.


Family Village: Disability History

Links to disability history resources.


Holocaust Museum: Treatment of the Handicapped

Brochure describing Nazi treatment of people with disabilities from 1933–1945.


Image Archive on the American Eugenics Movement

Key events, persons and social conditions contributing to development of eugenics – the effort to breed better humans. Presented through essays and images.


National Museum of American History: The Disability Rights Movement

Virtual exhibit available through the Smithsonian Institute converted from a live exhibit that physically existed from July 2000 through July 2001. Exhibit covers the disability rights movement, technology, mobility, the ADA, the parents movement and other topics.


Parallels in Time

Information about the history of society's treatment of people with developmental disabilities, including numerous videos and audio clips.


U.S. Department of Justice, Civil Rights Division, Disability Rights Section

An overview of Federal civil rights laws that ensure equal opportunity for people with disabilities.


With an Eye to the Past

Presentation celebrating the contributions Minnesotans have made to improve the care and quality of life of thousands of Minnesotans with developmental disabilities.


Infinitec: Infinite Potential through Assistive Technology

Infinitec, Inc. is a joint effort of the United Cerebral Palsy Association of Greater Chicago and United Cerebral Palsy Associations, Inc., Washington D.C.


Information Technology Technical Assistance and Training Center

ITTATC was created to increase the availability of accessible technology in the United States focusing, in particular, on improving the accessibility and usability of information and telecommunication technology, such as computers, web sites, and telephones, and office technology, such as copiers and fax machines.


The Rehabilitation Engineering and Assistive Technology Society of North America

RESNA: An interdisciplinary association dedicated to improving the potential of people with disabilities to achieve their goals through the use of technology. The organization does this through research, development, education, advocacy and provision of technology; and by supporting the people engaged in these activities.



National – International

Association of University Centers on Disabilities

Network advancing policy and practice for persons with development disabilitie and families


President's Committee for People with Intellectual Disabilities

Advisory group to President/Secretary of Health and Human Services services for persons with disabilties


Americans with Disabilties Act

US government source of Information and technical assistance on ADA


Partners in Policymaking

Leadership preparation training for adults with disabilities and parents of children with disabilities


Society for Disability Studies

Scientific and educational organization promoting research


National Council on Disability

Agency providing recommendations to President and Congress affecting Americas with disabilities


World Institute on Disability

Research, policy and advocacy for economic security and healthcare for persons with disabilities


Inclusion International

International advocacy for inclusive education


Disability Rights Advocates

Advancing equal rights and opportunities for people with disabilities


International Disability and Human Rights Network

Information network on disability and human rights


American Network of Community Options and Resources

Network to advance innovations that improve the quality of life for people with disabilities


Center on Human Policy

Research, policy and advocacy to insure rights of people with disabilities


Plain Language Association International

Information and training on Plain Language.


Convention on the Rights of Persons with Disabilties

CRPD: United Nations.


United States International Council on Disabilities

Non-governmental organizations, federal agencies, individuals committed to global disability rights.


National Association of State Directors of Developmental Disability Services

Association of state agencies providing public services to people with developmental disabilities.


National Association of Councils on Developmental Disabilities

Network advancing Developmental Disabilities Assistance and Bill of Rights Act.


Disability Rights Fund

Advancing UN Convention on the Rights of Persons with Disabilities


Include Everybody

International disability and millennium development goals.


Disability Knowledge and Research Programme

Program advancing health and quality of life for poor people in developing countries.


Office of UN High Commissioner for Human Rights

Various human rights treaties that touch upon disability issues.


Disability Rights Promotion International

Collaborative project to establish monitoring system to address disability discrimination globally.


Disabled Peoples' International

Network of national organizations of disabled people to promote human rights of disabled people.


Global Partnership on Disability and Development

Global initiative on international cooperation to integrate disability issues into development efforts.


Handicap International

Supports development work in health, social and economic inclusion, access to education and training.


Human Rights Watch

Independent organizations dedicated to defending and protecting human rights.


International Centre for the Legal Protection of Human Rights

Promotes human rights through the use of law with legal expertise and resources.


International Disability Alliance

Implementation of the UN Convention on the Rights of Persons with Disabilities.


International Disability and Development Consortium

Promotes rights of people with disabilities through collaboration and exchange.


International Disability Education Alliance Network

Facilitates exchange of information among individuals and organizations working on disability issues.


Making It Work Initiative

Initiative is a global multi-stakeholder initiative to promote effective implementation of the CRPD.


Mobility International USA

Disability and international development community bridge to promote people with disabilities as leaders


Ratify Now

International nonprofit supports grassroots advocates worldwide working to ratify UN CRPD.


Rehabilitation International

Global network of people with disabilities, service providers, researchers, agencies promoting rights.


United States Agency for International Development

USAID's policy for addressing disability issues.


Disability Rights International

Promotes rights and full participation of people with mental disabilities.


World Bank Disability

Links to mainstream organizations in international development community, include a focus on disability.